Rial Spreads Word On Pediatric Stroke Awareness
Six-month-old Kingsley Wells might (obviously) be young, but he is mighty. In fact, he’s made quite the impact throughout the state of West Virginia in spreading Pediatric Stroke Awareness.
Kingsley’s mom, Carrie Rial, said her son suffered an ischemic stroke at only four-months-old after going into cardiac arrest directly following his fourth open heart surgery. Kingsley is still at WVU Medicine Children’s Hospital in Morgantown, and he is diagnosed with Adams Oliver Syndrome (a very rare genetic disorder), Tetralogy of Fallot with Pulmonary Artesia (heart condition), cerebral venous sinus thrombosis, and most recently ischemic stroke.
“Kingsley has spent five out of his six months of life in the hospital. He’s a real superhero,” said Carrie.
“I was unaware that children and babies as young as Kingsley could have strokes until it happened to my baby,” she said. “I’ve joined a lot of support groups and used Google more than I should have. I found a lot of helpful information at www.CHASA.org.”
Carrie said she learned May is “Pediatric Stroke Awareness Month.” She said she realized for May to be declared “Pediatric Stroke Awareness Month” in West Virginia, she would have to fill out a proclamation request. Carrie said after doing such, she received a proclamation from Governor Jim Justice, making the month official.
Carrie said she has since made purple ribbons to hang throughout the state. She said “TeamKingsley” supporters are helping as well, and ribbons can be spotted in Sistersville; Carrie said those who spot a ribbon are encouraged to take a photo and post it to social media with #TeamKingsley.
“Kingsley still hasn’t recovered 100 percent from his stroke,” Carrie explained. “The thrombosis is still on his brain, and he has to take several medications such as blood thinners and seizure medications.”
Carrie said Kingsley is still not able to take a bottle, which he loved prior to the stroke. Kingsley was also expected to undergo surgery for placement of a tube to aid his nutrition.
“If everything goes well with his surgery, Kingsley could possibly get to finally come home. He has a huge family who love him very much; his four-year-old sister Luella misses him, and she and her mommy can’t wait until the day bubby gets discharged,” Carrie said.
Carrie said Kingsley enjoys getting letters and cards in the mail to be read to him. The address is:
WVU Medicine Children’s, Kingsley Wells PICU RM. 8
1 Medical Center drive Morgantown, WV 26505.